19 Aug Follow Up @ Cedars
Just finished my follow-up appointment with the Cedars-Sinai doctor. We’re navigating the traffic on the way home right now.
The results of my gastric emptying study done on August 6 show that I have “severe” gastroparesis. However, I learned that the severity of the condition does not always corrolate with severity of the symptoms.
He said that the gastroparesis is most likely the “post-viral” type, but he is ordering more tests to see if he can nail down why I have it. It’s still possible we may not be able to find out how it came to be. However, he believes it’s important to do everything to find out why since it’s rare for a male to get gastroparesis in my age group.
My blood work also showed an elevated level of something called Chromogranin, which does NOT mean there IS presence of a hormone-producing tumor, but indicates the possibility. So, I had another visit to the lab for more blood work drawn for further study.
The blood work is not conclusive for this, so he is ordering a couple more tests that have been scheduled for next week. One is called an Octreotide Scan, and it happens over 4 days.
On Tuesday morning, I’ll have an injection, and that’s Day 1. On Wednesday afternoon, I’ll go through a one hour scan, and that’s Day 2. Then on Day 4 (Friday), they’ll do another two hour scan in the morning.
Then, on Saturday morning, Aug. 28, they’ll do an MRI/MRA.
Finally, on Tuesday, Aug. 31 at 3:00 pm, I’ll have the follow-up appointment with the doctor for results of those tests.
That’s the info for now!