02 Sep I’m Not Alone
This morning, a story ran on NBC’s Today Show. It was about a young lady named Gentrie Hanson, who has gastroparesis, the same rare condition I’ve been diagnosed with.
While my experience is mine alone, it’s always good to know that you’re NOT alone! I also haven’t had as extreme of an experience as Gentrie has, especially in term of nutritional support.
Her story, so far, ends happily, with the installation of a gastric pacemaker. She is getting healthier and gaining weight, and it has been a successful procedure for her.
I posted the link on my Facebook page and received several comments from people hoping I can get the pacemaker. However, I clarified that I am not a candidate for it. My weight has been stable for a couple of months now, even though I am not symptom-free and still struggle with taking in enough calories with the daily nausea and abdominal pain.
The nausea and pain are not as intense as they were through about mid-late July, but they’re still daily. My diet is pretty much soft foods, low fiber and low fat. The smaller the portions, the better the result. So, I try to eat smaller meals more times per day.
Anywho, just thought I’d post the link to this story. I am happy to see this rare disorder get some press and awareness.